The focus of the 2013 Science & Leadership Symposium
is to train women with heart disease to establish and lead patient support
groups for women with heart disease in their local communities. The goal is to
have two women from each National Hospital Alliance member's community attend
the training and return to their community to lead and manage this new
WomenHeart Support Network at the hospital host site.
You
will learn about the medical aspects of heart disease, how to educate women in
your community, and how to lead a patient support network. You will also learn
how to tell your personal heart story to inspire and empower other women to
take charge of their heart health. You will meet and bond with other women
living with heart disease, and learn from the nation's leading health care
professionals, cardiologists, experts in women's health, and communications
professionals.
What is a WomenHeart Support
Network?
WomenHeart
Support Networks provide peer-to-peer, patient support for women living with
heart disease.
Support
for a woman with heart disease is crucial to her recovery and wellbeing, and
that of her family.
WomenHeart has found
that through its peer-led support networks women are able to make conscience
and well informed decisions about their health and health care based upon educational
programming and emotional support that these networks provide.
WomenHeart Support Networks meet on a monthly basis
and provide women with heart health educational information with an emphasis on
secondary prevention, as well as personal support, as they face their journey living
with various types of heart disease.
WomenHeart Support Networks are generally affiliated with a hospital,
cardiac clinic, cardiac rehab facility, or a faith-based community.
Currently, there are 121 WomenHeart Support
Networks in 37 states.
It is WomenHeart's
ultimate goal to have multiple WomenHeart Support Networks in every state!
Who is a WomenHeart Support Network Coordinator?
A WomenHeart Support Network Coordinator is a WomenHeart Champion who
runs a WomenHeart Support Network for women living with or at risk for heart
disease. She uses her survivorship as a tool and motivation to educate,
support, and advocate for women in her community. She has been trained
at the WomenHeart Science & Leadership Symposium and receives continuing
education through educational webinars and in-person training.
Why is support so important?
Support makes a difference.
Too often heart disease diagnosis or events
leave women feeling overwhelmed, depressed, or anxious about their future.
A recent survey of patients who participate
in WomenHeart support network meetings indicated that:
·
93% felt their quality of life has been
enhanced.
·
85.3% have improved their ability to communicate
with their health care provider.
·
93% have increased their understanding of heart
disease.
·
85.6% believe that attending meetings has helped
them deal with challenges in maintaining their treatment/medication regimen.
·
86.2% believe attending meetings has helped them
better communicate and explain their heart disease with family members,
friends, co-workers, etc.
How will WomenHeart support you
as a Support Network Coordinator?
In
addition to the training and education provided at the Science & Leadership
Symposium, WomenHeart provides continuous support to new Support Network
Coordinators starting Support Networks in their communities. This includes:
·
A
curriculum of thirteen (13) program modules on various heart-related topics
that can be used as the discussion topic for your monthly meetings (topics
include diet and exercise, anxiety and stress, healthy eating, depression, communication,
etc.)
Each module includes a
facilitator's guide, a short video clip presented by an expert in the field and
a handout for your participants.
·
Templates
to help with your meeting announcements, newsletters, power point
presentations, etc., to help market your network.
·
Information
on how to integrate the WomenHeart HeartScarves program into your Network; a
program in which handmade red scarves are delivered to women undergoing cardiac
procedures.
·
District
Leader Support – every Support Network receives the support, encouragement and
advice from WomenHeart District Leaders (WomenHeart
Champions who have previously led Support Networks or are currently leading
them).
·
Continuing
education via webinars and in-person training.
·
National
events calendar to help market your support network and local heart health
events.
·
Monthly
e-newsletter to keep you current on WomenHeart initiatives around the country
and from the national office.
·
A
WomenHeart email account and business cards.